This group was created to update everyone on Madi’s progress, offer love and support for one another, and pray her back to health!
Madi continues to be a fighter and get stronger every day. Over the last few days, speech therapy has been there to work with her and help her to be able to commmunicate. Using a tablet, she is able to identify objects, letters, and even points to her pain level. The tablet also allows her to point to communicate what she needs, what she feels, what she wants, etc. On Wednesday, Madi pointed to wanting socks, so Dawn looked a little puzzled but put her socks on anyway. In true Madi fashion, she got up the strength to pull her sock back off and chuck it on the floor like get these things off of me! Dawn and Kyle had a sweet chuckle and a moment of amazement to see her get up the strength to do that because they both know Madi hates having socks on!
Madi was having some hand and eye movements that were a little concerning, so a rapid MRI was done the night of the 20th. The MRI came back stable. At this point, we are impatiently waiting for the fluid and swelling to go down and the bruising to heal to have Madi regain her speech.
Madi will be transferred to CHOP on 12/26. She will continue speech therapy and will start occupational and physical therapy to help get Madi strong before she starts radiation with a tentative date of Jan 9th. Madi will also be having a lumbar puncture and a procedure to place her chemo port.
In the meantime, we are still waiting for the pathology results to tell us which of the four types of medulloblastoma it is. The four types are WNT, Sonic the Hedgehog, Type 3, and Type 4. The most favorable is the WNT. Type 3 being the least favorable.
Dawn also continues to read and show Madi text messages and videos that are being sent to her phone. These are helping tremendously to get Madi to respond so please send away!!!
The outpouring of support has been absolutely amazing and we are so thankful for all of you! They asked to include a special thank you for all the prayers, texts, video messages, cards, etc. that have been sent, and while they may not be able to respond to everyone, they do appreciate and read every single one to Madi!
A few reminders of upcoming ways to continue to support the family…
There is currently a Go Fund Me in place to donate. Thank you so much for the generous donations it has already received.
Dec 27th – There will be a Dine to Donate at Texas Roadhouse where 10% of your bill will be donated. Please mention “Good Shepherd Catholic School” when dining. Tickets will also be available for our basket raffle where 100% will be donated.
4463 Southmont Way
Easton, PA 18045
Jan 3rd – Chick Fil A will be sponsoring a Dine to Donate where 15-20% will go directly to the family. Please mention “Madison Bodor” when dining.
2610 MacArthur Rd
Whitehall, PA 18052
TBA – T-shirts have been designed and will soon be ready to purchase. T-shirts will be available to purchase by anyone who would like to support. Good Shepherd and Allentown Central Catholic have graciously agreed to a dress down day for the students to wear the shirts in support of Madi. We will be taking a group photo at each school and sending them to Madi. More details to follow.
Thank you again for your support, and please continue to send prayers to Madi and the entire Iafrate/Bodor family as they continue to fight this journey!
