Wow, so much to report!!! Madi has been an absolute Rock Star in so many ways over the last week! Her speech continues to improve, and she’s nailed all 3 three procedures…chemo port, G-tube, and lumbar puncture!
Every day continues to be her best day yet! She walked the hallways, assisted, but it’s definitely getting her ready to do the stairs again at CCHS. She completed her swallow study and aced it so she’s one step closer to her Chic Fil A! She’s even kicked butt in OT, getting her one step closer to texting!
Madi had a bit of pain the past few days from the 3 procedures, but she’s not letting that stop her… yesterday she completed her 1st full day of rehab!!! She had speech, PT, and OT, and of course, she kicked butt.
We are happy to report she was moved to a new room and is back to having a window again which she is very happy about. Her speech has improved so much in a few days, and she can’t wait to be able to call her friends once she feels more like herself. Every day she tells Dawn and Kyle she wants to go home, and they reassure her she will. She misses playing piano, violin, going to school, and seeing her friends.
Well, no more missing that piano because today during OT, Madi put her fingers on those keys and played away!!! Madi was able to use her right hand and play Nuvole Bianche! The room was a sobbing mess with the happiest of tears that she was not only able to remember how to play, but to actually be able to phsyically play! It was definitely ‘music to their ears’!
Madi was also able to FaceTime with Callum, Aria, and her grandmother yesterday. They were soooo excited to talk to her, see her smile, and laugh together. She also got to see Luna
During the call, Kyle was talking to Aria, Callum was in the background being silly with his grandmother, and Dawn was next to Madi holding her hand. Madi closed her eyes, and a few seconds later, she said, ‘I feel like I am home right now’. Madi just misses everyone so much!
Her radiation start date was pushed back to the 16th due to something with the proton radiation machine. Everything happens for a reason, and I believe this is God’s way of giving Madi a few extra days of therapy to get even stronger before she starts her treatments. This will give her a full week to continue to heal, build her strength up, and kick butt in rehab prior to starting the treatments!
Dawn still continues to read Madi her texts and all the messages on Madi’s Angels, so PLEASE keep sending them! These texts are SO important for Madi’s spirits. She can not believe how many people are praying for her, and it means the world to her!
Thank you all for your continued prayers, well wishes, donations, attending the dine to donate events, and all the other ways this family feels your love…they just don’t know how they would do it without you all!!!
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